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You Dont Look Sick

You Dont Look Sick

Woman With Crohns Strikes Back At People Saying You Dont Look Sick.

We all have a separate side we show to the world that may look very different than what we are feeling on the inside.

Everyone is fighting their own invisible battles, and to assume that everyone’s photos, makeup, and personality reflect what their entire life is like would be wrong.

The Internet has made it possible for people to peer into each other’s lives through photos and statuses, but, usually, that is just a sliver of their complicated, multifaceted world.

Unfortunately, some people who saw the online life of Mary Horsley — a blogger, veteran, and person living with Crohn’s disease — thought that she didn’t fit their idea of someone living with an illness, and chided her for “not looking sick.”

In response to the comments, Horsley decided to create an online post to talk about what it is like living with an invisible disease like Crohn’s.

Her words are an important reminder for us to respect those who are battling illnesses, like this girl living with type 1 diabetes, as well as people with depression or other disorders that are unseen from an outside perspective.

Read More: You Dont Look Sick

 
Crohns disease

Crohns and Prednisone

Crohns and Prednisone , If you’ve ever been on Prednisone, you know it is a love/hate kind of thing. I love it when I’m feeling so awful that I can’t get out of bed, when I want to die, or at least not live in the state I’m in. I’m also thankful for it when I can’t function except to run to the bathroom, of course and I’m grateful for it when, on the third or fourth day of taking it, I start feeling better. I can eat again. I’m not in pain. That horrible weakness all over my body goes away. I am rejoicing in prednisone happiness. I eagerly swallow it in the morning, knowing that each day I take it I’m going to improve and feel more myself. Soon I will want to eat regular meals again. I will want to leave the house. I will be able to sleep through the night. Yay, prednisone!

I started back on prednisone at the end of December, after getting a massive flare-up, as I talked about in an earlier column. I started at 40 milligrams, which is a typical starting dose for me when I’m feeling that bad. I’ve been doing the usual ever since two weeks on 40 mgs, one week on 30 mgs, one week on 2o mgs, and now I’ve just started a week of 15 mgs. Then I’ll go to 12.5, 10, 7.5, 5, 2.5, and be done. At least that’s the plan.

I’m loving/hating prednisone right now. I know it saves me literally when I’m feeling awful, but I also know that it’s horribly bad for me. My face is really swollen right now, I’ve gained a few pounds, and those are just the short-term side effects. I’m always aware of how it creeps up my blood pressure, how I was diagnosed with osteoporosis at just 43, how I get these strange muscle aches in my legs after I’ve been using it a while, how my mood can go from go-with-the-flow to agitated and depressed and on edge.

 

Read More: Crohn’s and the Prednisone Taper: Love/Hate Relationship Continues

 
Crohns Disease Affects Brain Function

Crohns Disease Affects Brain Function

Crohns Disease Affects Brain Function, A new research has found that Crohn’s disease not only affects the gut but also has an impact on the brain. Crohn’s disease is a chronic inflammatory bowel disease characterized by inflammation of the digestive, or gastrointestinal, tract.

The research published in the UEG Journal on Wednesday shows that those with Crohns disease experience slower response times compared with individuals who do not have the disease. The cognitive response times were 10 percent slower than normal and significantly corresponded with symptoms of active inflammation, including abdominal pain and fatigue, the study finds. The results show the presence of a mild cognitive impairment in Crohn’s patients. This also supports frequent complaints from patients related to lack of concentration, clouding of thought and memory lapses. The study also found that Crohn’s patients had a higher median depression score and a poorer rate of sleep quality.

“These results reinforce the notion that Crohn’s has a wide range of multi-systemic consequences with the impact of the disease affecting patients not only within but well beyond the digestive tract,” Dr. Daniel van Langenberg, the lead researcher of the study, said in a statement. “The findings appear consistent with experiments that have shown that bowel inflammation results in an upregulation of inflammatory hippocampus activity in the brain. This, in turn, might account for the slower response times that were observed in the study.”

Crohn’s disease, which is one of the two main forms of inflammatory bowel disease, can cause abdominal pain, diarrhea, weight loss, anemia, and fatigue. There is no cure for Crohn’s disease but medications such as steroids and immunosuppressants can be used to slow the progression of the disease.

Commenting on the research, Gigi Veereman, UEG inflammatory bowel disease expert, said: “This research highlights the need for regular interventions with multi-disciplinary IBD teams to address the wide issues that are presented with Crohn’s disease. This will enable a greater understanding of this complex condition and therefore improve the service and care offered to each patient.”

Read More: Crohn’s Disease Symptoms Update: Inflammatory Bowel Disease Affects Brain Function